DeDe Van Quill

Biography

DeDe Larsen Van Quill has been an FNMS member since 1999.  Her son, Jackson was born with Miller Syndrome.  After receiving Jackson's diagnosis she began searching for as much information as she could on this rare genetic syndrome.  She soon found the Foundation for Nager & Miller Syndromes and met Founder, Margaret Hogan in 2000.  In 2002 Margaret tapped DeDe to be her successor as Director of the foundation. 

Education

DeDe earned her Bachelor of the Arts in Business Administration/Marketing from Washington State University in 1989.  However, her real education began after her son, Jackson was born.  Currently she runs a growing remanufacturing company located in two states, but loves working with FNMS' member families.