The Foundation for Nager and Miller Syndromes

Welcome to FNMS Online

Founder, Margaret Hogan Honored at Women of Concern Awards Chicago

The Chicago chapter of Concern Worldwide US, an amazing organization that raises money and awareness to support its mission of advancing global health, nutrition and education efforts in the most vulnerable communities, honored FNMS Founder, Margaret Hogan posthumously at their Awards Luncheon on April 22, 2016 in Chicago, Illinois.  Margaret’s sister, Beth Atkins delivered a touching chronicle of Margaret’s work and accomplishments.  Sarah Wood and Kerry Ryan Lynch were also honored for the work they each have done on behalf of their communities and foundations.  

FNMS would like to thank Women of Concern Chicago, Concern Worldwide US and this year’s Event Chairs, Yvonne Derrig Bruce & Caroline Tierney for their hard work, dedication and passion.

Do not go where the path may lead, go instead where there is no path and leave a trail." - Ralph Waldo Emerson

Nager And Miller Syndromes
Nager And Miller Syndromes
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Nager And Miller Syndromes Nager And Miller Syndromes

Genetic Research

Miller Syndrome Gene Discovered!

Nager & Miller Syndrome Research Projects

The Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing...

Read more »

2017 FNMS Family Conference

FNMS is pleased to announce that the 2017 FNMS Family Conference will be held in Boston, Massachusetts - June 22nd - June 25th.

 Room Reservations for our venue, the Cambridge Marriott can be made using the following link

 Book your group rate for FNMS Family Conference and Room Block
 

 More details to come, so stay tuned!




 

news
Jun 12
Ultra-mini Triathlon in Marathon!
The Beranek Family is hosting their 11th Annual Ultra-mini Triathlon in Marathon, Wisconsin to benefit FNMS! read more
blog
Jun 29
2015 FNMS Family Conference!...
The upcoming 2015 FNMS Family Conference in New Orleans promises something new! read more
 
 

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